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Online Links
The following is a listing of websites and telephone hotlines that contain information on hepatitis C. The presence of an internet site or telephone hotline on this list does not constitute an endorsement by the Massachusetts Department of Public Health (MDPH) of the organization, or information, products, or services provided, and none should be inferred. MDPH is not responsible for the content of the individual organization webpages or hotlines found on this list. This list is provided as a guide for the public to free information that is available on hepatitis C. The information that these sites provide may not be from peer-reviewed medical journals, and the content may not have been subject to review for accuracy by any medical or other authority.
American College of Gastroenterology
www.acg.gi.org
703-820-7400
Provides summaries of hepatitis A, B and C and discusses treatment. Geared toward patients. Site also includes a physicians' forum with selected abstracts pertaining to GI (gastrointestinal) disease.American Liver Foundation (ALF)
www.liverfoundation.org
1-800-GO-LIVER
Materials for patients and providers. Discusses home testing. Contains a fact sheet and National Institutes of Health ( NIH) consensus statement excerpts. Has links to many other sites. ALF will send an information packet upon telephone request.Centers for Disease Control and Prevention www.cdc.gov/ncidod/diseases/hepatitis
1-888-4HEP-CDC
Contains a fact sheet, frequently asked questions, many links to other sites. Materials for both patients and providers. The toll-free phone number accesses recorded information about hepatitis C.Centerwatch Clinical Trials Listing Service
http://www.centerwatch.com/index.htmlComprehensive information related to clinical trials for patients and researchers. Includes a database of clinical trials being conducted internationally as well as new drug therapies recently approved by the FDA. Also has online bookstore for patients and providers, general clinical research information, and a range of brochures and reports on clinical trials, some available via e-mail alerts.
ClinicalTrials.gov
http://www.clinicaltrials.govDeveloped by the U.S. National Institutes of Health (NIH). Searchable database of current clinical trials sponsored by federal agencies and the pharmaceutical industry. Extensive, consumer-oriented resource information on participating in clinical trials. Studies listed in the database are conducted primarily in the United States and Canada, but include locations in about 70 countries.
HCV Prison Project
www.hcvprisonnews.orgSite of the HCV Prison Project, a consortium working to provide support and education to prisoners with hepatitis C and co-infected with HIV and hepatitis C. Provides current information on state and federal correctional health issues.
Hepatitis Education Project
www.scn.org/health/hepatitis/index.htm
Offers links to many sites for both providers and patients.Hepatitis Foundation International (HFI)
www.hepfi.org
1-800-891-0707
Offers a fact sheet, discussion of cirrhosis, excerpts form the National Institutes of Health ( NIH) consensus statement and the ABCs of viral hepatitis. Patient-oriented information provided in Spanish, French, Italian and Portuguese. HFI will send out an information packet upon phone request and will answer general questions over the phone.HIV and Hepatitis.com
www.hivandhepatitis.comProvider-oriented site addressing HIV/hepatitis C co-infection. Includes recent reports from Digestive Disease Weekly, online drug reports, clinical trial information, and current HIV and hepatitis treatment information. Note: Site is sponsored by several pharmaceutical companies.
Massachusetts Public Health Association (MPHA)
http://www.mphaweb.org/General information on public health initiatives and advocacy in Massachusetts. Includes links to public health-related state government sites, local and international public health advocacy groups, and government-sponsored health care sites. Provides background on the Massachusetts Hepatitis C Coalition http://www.mphaweb.org/init_hepc.html, including related legislative alerts and press releases.
Mayo Clinic Health Oasis
www.mayohealth.org
Contains the Mayo Clinic fact sheet from 2000 and provides basic information on risk, transmission and treatment.MEDLINEplus Health Information http://www.nlm.nih.gov/medlineplus/hepatitisc.html
List of links to hepatitis C websites from a range of national associations and centers. Information ranges from a general overview of hepatitis C to treatment options, prevention, screening, clinical trials, and research. Some information in Spanish. MEDLINEplus is updated daily and also contains lists of hospitals and physicians, a medical encyclopedia and dictionaries, extensive information on prescription and nonprescription drugs, and health information from the media.
Model Programs for Hepatitis A, B, and C Prevention
www.hepprograms.orgDescribes model programs for hepatitis A, B and C prevention for adults and adolescents. Includes special sections on men who have sex with men; STDs; family planning; drug treament; juvenile corrections; and adult corrections.
National Foundation for Infectious Diseases
www.nfid.org
A provider-oriented site that contains a fact sheet and links.National Institute of Diabetes, Digestive, and Kidney Diseases www.niddk.nih.gov
Provides a fact sheet, a discussion of chronic hepatitis C and a list of references. Also contains a database to research educational materials.National Women's Health Information Center
www.4woman.gov
1-800-994-WOMAN (1-800-994-9662)
Contains a search engine that will pull up a range of hepatitis fact sheets and articles, including some in Spanish. The site materials focus on women's health. A hotline provides information in English and Spanish, and referrals to other agencies and hotlines. The Center will send printed materials upon phone request.World Health Organization
www.who.int/emc/diseases/hepatitis/index.htmlProvides fact sheets on hepatitis A, B, and C and articles on global surveillance and prevalence of hepatitis C.
Resources
Diagnosis & Treatment Algorithm
Fact Sheets
Hepatitis A
English (Downloadable PDF-98KB)
Spanish (Downloadable PDF-50KB)
Portugese (Downloadable PDF-91KB)
Hepatitis B
English (Downloadable PDF-85KB)
Spanish (Downloadable PDF-38KB)
Portugese (Downloadable PDF-79KB)
Hepatitis C
English (Downloadable PDF-84KB)
Spanish (Downloadable PDF-32KB)
Portugese (Downloadable PDF-30KB)Resource Guide
Telephone Hotlines
Massachusetts Hepatitis C Hotline
888/443-HepC (4372)Centers for Disease Control and Prevention (CDC)
888/1HEPCDC or 888/443-7232
The National Women's Health Information Center
800/994-WOMAN (800/994-9662)
Hepatitis Foundation International
800/891-0707
American Liver Foundation
800/GO-LIVER